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Medical Bombshell

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7 Comments
by
DuckiesDarling
, Sep 24, 2013 at 1:19 PM (4351 Views)
Ever since I was 10 years old and first heard the doctors whisper about how bad my lungs looked on x-ray I knew there would be issues. They warned me it would affect me when I got older. When you are 10 you think old is 80… I was in my 30’s when problems started to develop. Couldn’t exert myself without stopping to do some pursed lip breathing to try and oxygenate, problem was exertion wasn’t walking across town or up a flight of stairs.. Some morning’s exertion was rolling over and sitting up in bed.
Cold weather affected me greatly, coughing til I threw up a lot of times. I went to countless doctors and pulmonologists and had pulmonary rehab and a wedge resection to biopsy. This little fungus called histoplasmosis really did a number on me. It led to countless bronchitis and pneumonia and in the end pulmonary fibrosing in my lungs.

For the past year and half I have struggled with severe edema in my feet and legs. They do not know the cause. They increased my meds to the point I am taking 160 mg of Lasix and 100 mg of Aldactone every day, it’s dangerous as it depletes other minerals and leaves me with severe cramps at times.

I was on steroids for almost a year and gained 100 pounds, I have lost 60 of them but the last 40 is stubborn and seems to be the fluid that I just can’t quite get rid of. It’s not unusual for my weight to fluctuate by 15 pounds from day to day due to the fluid I produce. I’m restricted to 1.5 liters of fluid a day and it doesn’t help.
My last doctor appointment the pulmonologist looked me right in the eye and told me I was dying. He ordered a sleep study and I had that done, they woke me three times to check if the pulse oximeter was working then they stuck me on oxygen.
I have a vascular ultrasound tomorrow of my legs and I have been ordered to do a PT/INT to check clot time for a baseline on Coumadin again.

All in all it’s been pretty distressing week. I have high hopes that they make actually figure something and start reversing things because I really want to prove my doctor wrong. After all they told me at 10 I was terminal and I’m now 42. So I have a decent track record of confounding them.

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Updated Sep 26, 2013 at 1:21 AM by DuckiesDarling

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Comments

  1. SweetJ42&Stephenne's Avatar
    big hugs (((((((((((((((((TWIN))))))))))))))))))) send prayers ur way .. hoping u so show them docs ur a strong lady and a awesome one at that hang in there..
  2. DuckiesDarling's Avatar
    Thanks {{{{{{{{{{{{TWIN}}}}}}}}}}}}} I'm trying.
  3. comfyme's Avatar
    Im sure sorry to hear this. My wife has had a double heart valve replacment. she also has puliminary hypertention. She is begining to get better so I kind of understand your situation. My thoughts and prayers are with you. GOD bless you.
  4. bib4u's Avatar
    Since you are in NZ, please consider MANUKA HONEY..it's a medical grade honey and may help!

    btw, it may be possible to slowly wean yourself of ..steroids! worth a shot...I know a few that have, but[I] it took them years, but both are now steroid free and only use inhalers for their asthma..etc...each person is different, one step at a time, but NEVER give up![/I]
    Updated Sep 27, 2013 at 2:36 PM by bib4u
  5. DuckiesDarling's Avatar
    Manuka Honey wouldn't help what's wrong, I have some, but not currently in NZ. I am not on steroids now, been off for awhile but still struggling. I'm not gonna give up, thanks.
  6. 12voltman59's Avatar
    Well Duckie--I wish you all that best with this and surely do hope that you once again prove "the experts" to be wrong.

    With this year being so bad for allergies and sinus issues---I have developed a form of asthma that is related to the congestion and such that all this irritation from allergies and such causes--so I have to use an inhaler at times and have had to go into the VA for nebulizer treatments. It sure sucks to have times that you feel like you cannot breathe.

    I am glad I did stop smoking sometime back----and I guess I am "paying" for that to some degree now--I just hope that these conditions that have lead to it being a record year for these sorts of problems alleviates soon---this is getting to be a real problem for more and more people.

    If the conditions continue--they say I can develop not just "situational" asthma relating to the sinus and allergy symptoms---but a full blown case.

    I am not in your exact situation---because most of the time I am doing OK--but once in awhile---I sure do get hit with it--mostly if I am outside for a long time--its really getting kind of bad because the farmers are starting to harvest their fields now and that stirs up all kinds of dust which can set off me wheezing and sneezing--then I need to take a shot off the inhaler.

    When I cut the grass and pick up the falling leaves now--I wear a dust mast to help keep out the dust and such.

    Good luck and take care--keep us informed.
  7. longhardone69's Avatar
    Darling sorry to hear this keep the faith alive that your immune system will conquer this ,and keep looking for the answers thru various research , medical journals inside the US and outside the Us . I started to read a book called the ultramind solution by Mark Hyman very intresting about funguses and such give it a looksee ,,12 volt im with you sinuses are raging this year allergies too its got to be something in our air and our water that is causing all this .
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